About Me
Let's Get Acquainted
If you want to learn more about my life with this rare condition stay tuned. Here you will be able to ask questions write comments and stay in contact with me. Although not only with you be able to see all the difference in my lif ebut also how I am able to participate in day to day activities with a few changes to the routine.
However, I wanted to start this blog to share my story on how I ended up with this conditon. My purpose is to educate people of this conditon and spread awarness. This way I can show the many steps of how to deal with it.
My goal is to start a welcoming community as well as a safe place to all those poeple that might be stuggling and don't know it. I believe there is more than just about 1 in every 230 million people that have this condition. Although they just might not be documented. This way we will be able to spread awarness as the sciencetific reaserch contines growing.
If you want to help me on this journey there is so many things you can do. In addition to this you will be able to get involved by telling your friends and family about this interesting and fasintating condition.
Stay in Touch
This is a place were you are welcome to keep coming back here to see new content. However, a more convient option is to subscribe to my newsletter! You will get updates on new posts and special content that is only available to my subscribers.